Working Group:
Fibrous Dysplasia / McCune Albright Syndrome (FD/MAS)
| Name(s) | Expertise / Role | Organisation |
|---|---|---|
| Lead: Natasha Appelman-Dijkstra | internist-endocrinologist, EuRR-Bone coordinator | Leiden University Medical Center, the Netherlands |
| Roland Chapurlat | rheumatologist | INSERM, France |
| Gaby Doxiadis | patient representative | Dutch FD/MAS foundation, the Netherlands |
| Kassim Javaid | rheumatologist | NDORMS, University of Oxford, UK |
| Diana Ovejero Crespo | endocrinologist | Hospital del Mar, Barcelona, Spain |
| Daniele Tessaris | pediatric endocrinologist | Regina Margherita Children’s Hospital, Italy |
| Jamie Watson | patient representative | Fibrous Dysplasia Support Society, UK |
| Nerea Arrieta Urriategi Magdalena Caballero Campos |
patient representatives | Fibrous Dysplasia, Spain |
| Ana Priego Zurita | pediatric endocrinologist, EuRREB fellow | Leiden University Medical Center, the Netherlands |
| Lothar Seefried | orthopedic surgeon | University Hospital at the Julius-Maximilians University, Germany |
